The Network of Networks (N2) is a not-for-profit incorporated organization and an alliance of Canadian research networks and organizations working to enhance national clinical research capability and capacity. N2’s Vision: To be recognized as Canada’s alliance for excellence in clinical research. N2’s Mission Statement: To enable and enhance clinical research capability and capacity in Canada.
Under the Memorandum of Understanding, HealthcareCAN and N2facilitate joint goals in clinical research, particularly in the areas of education, advocacy, strategic coordination and alignment. N2 makes available a suite of compliant Standard Operating Procedures, education and training , and quality tools.
Here are a few examples of N2’s work over the past year:
Clinical Research Participation Experience Survey
N2 is assisting the British Columbia Clinical Research Infrastructure Network (BCCRIN) with recruitment for the Canadian Clinical Research Participation Survey. Results from this survey will be used to inform researchers, research sponsors and policymakers to aid in improving study design, clinic operations and research site procedures in order to reduce barriers to research participation and improve the experience for study participants in Canada. These results will be shared with N2 members and various knowledge translations pieces will be made available for use.
N2 Metrics Education Series
N2 started a Metrics Educational Webinar Series. The four-part series provided learners with the foundation, development of metrics, the use of process maps, using metrics effectively, and metrics visualization & benchmarking performance to gain valuable insights.
N2 is in the process of developing a follow-on education associated with metrics, so stay tuned!
N2 Launched Clinical Trials Education Website
N2 launched its website created for the public to learn about clinical research and trials – www.itstartswithme.ca. The site was developed with leadership from N2’s Clinical Trials Education and Awareness Committee and also supported by a CIHR SPOR Patient Engagement Collaboration Grant that facilitated a valuable partnership with patients and caregivers to inform the site.
In addition N2 is planning in-person patient awareness campaigns that will bring together clinical research staff, patients and the public to discuss clinical research and address any questions or concerns.
Continuing to build on resources to help N2’s members educate patients, potential participants and the public about clinical trials N2 launched videos (English and French) to accompany its clinical trials awareness website www.itstartswithme.ca. The video provides some basic information about clinical trials and is a starting point for having a conversation about clinical trials.
Following the video announcement, N2 has provided additional resources for its members to help provide information about clinical trials. These resources are:
A postcard to distribute with information about the website.
Permission to Contact Toolkit (PTC)
N2 launched the Permission to Contact (PTC) toolkit during its annual meeting in Toronto on February 4th, 2016.
PTC is a patient enrollment strategy that facilitates patient engagement in research by inviting all patients to be participants in research. The Permission to Contact (PTC) Platform overcomes the obstacles of consenting and patient enrollment by asking patients ‘do you give permission to be contacted for future research opportunities?’ as part of the routine health clinic practice. The Platform streamlines recruitment of participants enabling completion of research studies, especially for studies requiring a large number of participants.
The PTC Tool Kit was developed in partnership with the Office of Biobank Education and Research (OBER) in British Columbia to enable organizations across Canada to efficiently implement the PTC Platform, and to begin setting a national standard for the key elements of PTC.
This tool kit has been developed to provide practical “how to” information and resources for individuals interested in setting up a PTC program within their organization. The in-depth downloadable PDF document contains information on budget considerations, stakeholder engagement, data management, and a strategy checklist.